Half a decade of Long COVID
Half a decade of Long COVID
Looking back on half a decade, there have been numerous milestones in Long COVID research, advocacy, and greater societal awareness, many led by people with the disease. There has also been, and continues to be, a lot of loss.
Over the coming weeks and months, first-wavers around the world will observe five years with Long COVID. Many already have. Others with related diseases like myalgic encephalomyelitis (ME) — who warned us about the long-term effects of pathogens early in the pandemic — have been sick for decades.
Despite the overwhelming science finding that COVID-19 impacts nearly every organ system and documenting the risk of reinfection, our federal government and health agency leaders deny and minimize the disease. Abelism and late-stage capitalism propel them as the Trump administration rolls back potential progress and disability protections in what one federal worker recently called “fascist and Orwellian” policies. This moment rings with the chilling reminder of the rise of fascismfollowing the 1918 Spanish flu pandemic.
Today, the name continues to address widespread denialism and minimization. Often media outlets state that Long COVID lasts for only “weeks or months,” or that most cases “resolve.” Unfortunately, neither is the case.
Many studies have shown that a large majority of people with Long COVID have not recovered. Millions of us are proof that Long COVID can last half a decade, and that it (and related diseases triggered by COVID-19) are lifelong. This mirrors chronic illness from earlier pathogens: a 2021 study about SARS-CoV-1 found that people infected with this virus were still disabled nearly two decades later.
I’m a healthcare worker and everyone I work with mocks Covid and being precautionary, let alone even acknowledge that long-COVID exists. I can’t imagine having long-covid and having to deal with the massive amount of healthcare workers thinking you’re full of shit. It’s actually shocking sometimes to see how many healthcare workers and doctors are completely ignorant.
It really fucking sucks. It compounds the suffering so much.
I’ve had friends from support groups end up killing themselves because they can’t get the support they need.
Thank you for being on the right side of things. ❤️
My oldest sister got [what she believes to be] COVID in Feb 2020. She's been on disability since then, and while she's not cognitively impaired, she can't walk around for more than 60 seconds before having to lay down again.
If she doesn’t have a specific diagnosis yet, (Long COVID is an umbrella term for many post-COVID illnesses), I’d suggest looking both into POTS and ME/CFS which can present with that kind of fatigue and inability to stand up for long you mention. (These illnesses are commonly triggered by COVID and part of the long COVID phenomenon):
Sorry to hear about your sister. COVID is really a mass disabling event.
For as much as I read about long COVID, I can't find a doctor who will acknowledge anything more than "yeah, that's an interesting theory" and I've seen doctors in Spain, Mexico, US, Hungary, and Thailand. COVID definitely affected me long term. One thing that seemed to heal it about 95% for me was the traditional frog medicine, kambo. There is some scientific basis to it working via documented peptides, but very few studies.
Look for specific long covid clinics. Usually at university run hospitals or facilities.
They use some wildly off label meds, but they're getting results.
