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Miah @rblind.com

Legally blind nonbinary crone, vet tech, fantasy and horror writer, lifelong nerd. Raised by hippies, lived in an intentional community for 12 years, was Goth before it was cool. Makes things out of yarn.

Posts 1
Comments 4

Introductions

Mods, please let me know if this is not in line with your plans for this community. I’m flying blind here, lol so funny. Don’t know anything about Lemmy or the Fediverse or what this community is supposed to look like. This is just me, bull in china shop.

I’m a big fan of old-school forums, and every good old-school forum has anIntroductions thread where newbies can pop in and say hi, I exist, and hopefully get some hellos back and feel welcomed and get a sense of what people are like. IAnd I figure, we’re starting out fresh here, very small number of people to begin with so it’s perfect to do now. Hopefully I am not the only one who thinks this and will not just be the solo idiot posting their life story for the entertainment of the public.

******

So, I’m Miah. I”m 53, have been functionally blind in one eye since childhood annd lost most of the vision in my good eye about ten months ago from Ischemic optic neuropathy. I’m now legally blind, have some central acuity but horrendous vision all around, including toilet-roll FOV, dead spots everywhere, photosensitivity, and lots of artifacts that get worse when I use my eyes too much.

I use a long cane and screen readers, although I do a lot of screen navigation visually. reading screens is doable but sucks. I also llisten to audiobooks.

I’ve been a veterinary technician for many years, and since going blind am still able to work as a lab technician and “Girl in the Chair” at an animal hospital. I’m also a writer of fantasy and horror fiction. I stopped writing for years but started up again last year when I went blind, mostly because there was fuck-all else I could do. I’ve reclaimed some of my pastimes now but am still writing. Working on something that wants to be a novel but is still in very early stages.

My other main hobby is crochet. I’ve been doing it for 25 years or so, and found it was still possible to do it after I went blind. I crocheted like a fiend for my first few months I want to try knitting soon - I did knit before going blind but it was definitely my B game, so much more challenging than crochet. Other fiber crafts may follow, but it’s going to be a while before I feel confident enough to try needle felting without vision.

I’m nonbinary, have been married for decades and have two kids. One teenager and one all grown up and out on her own. Also, one small dog worth mentioning as he was my lifeline during the onset of blindness.

I found r/blind early in my journey when I could not get around the Web at all, could not do anything or communicate properly, and pretty much just wished it would all end. The sub was an invaluable source of information, inspiration and understanding for me. I have been a daily visitor ever since then. I love the sharing of journeys and meeting cool people who know what I’m going through, and hopefully I’ve helped some other newly blind folks with my own stories. I am livid about the way Reddit mishandled the accessibility concerns with their API circus, and while I will continue to visit the sub as long as it’s accessible to me, I fervently believe that there must be a hub somewhere that is hosted and curated by blind people for blind people, that will not suddenly be rendered inaccessible by the whims of a sighted billionaire. That is what I hope will grow here.

Love, Miah

Passes mic

1
I got a longer cane and am very surprised by some of its advantages
  • I bought myself a long cane before I was even diagnosed Found it incredibly helpful in so many ways, I love its reach and feel like I’m holding a staff when I’m not moving. What I bought was was like collarbone height, and it’s perfect for me. I move fast when I can, and the cane lets me do that.

    (ETA: I had the feeling “collarbone height” was inaccurate, so I just checked and my cane is actually a little over shoulder height. I think when I was doing my original research for the cane, collarbone was what I was advised, but I added a couple of inches.)

    When I finally had O&M training, my instructor looked at my cane and seemed super hesitant, saying it was pretty long for me.But by the end of the session he said it was actually perfect for me. I do have to go slower than I used to, and he told me to slow down several times, which really did help me but doesn’t come naturally to me. But at least I don’t have to stoop and mosey with a long cane. Between my limited field of vision and the long cane I can get around really well most of the time.

  • So how is everyone doing?
  • Hi, I’m VixenMiah, but these days I feel more like a crone than a vixen so I’ll just go by JustMiah or Miah. Doing okay, I’m able to work and am still picking up assistive tech. I got my PC working (although still get BSOD every so often) and tried looking for games on Steam after I got NVDA working. Still trying to find games but there is hope. The Lapp is also so much better for writing than my iPad is and I really want to get ambitious about a book I’m writing - so that’s a big help. We struggle on. I’m adapting but my vision is getting more and more truly fucked. Without I’m finding screens harder and harder to use and relying mostly on screen readers.

    Yeah, never ask me how I’m doing unless you have time for like a cup of coffee.

    Gotta say I do love screen readers. I talk to machines and computers all the time, and it is nice that they talk to me now. I feel like I’m on the Enterprise. Still looking for the perfect voice though…